Meet Jane S.

Jane and her husband, Chris, have two children: Leland is 14 and Taylor Rose is 11. Leland was born prematurely and diagnosed with severe hemophilia A. Jane's father had hemophilia, so Jane knew she was a carrier and that there was a 50/50 chance Leland would have hemophilia. Jane is the Program Director for the New England Hemophilia Association Board of Directors.

"My father had severe hemophilia A. I realize now, as an adult, how much he downplayed it when we were growing up. He was very proactive in treating his hemophilia. He never ignored it, but he didn't make a big deal out of it either. My parents dealt with hemophilia in such a positive manner. It was a great example to grow up with, and it guides me in raising my children. It was the greatest gift they could have given me."

Read Jane’s stories.
The HTC: Another Perspective
Hemophilia: A Positive Influence
Calm After the Storm
Wreaking Havoc: An Endless Cycle of Pain
Simple Pleasures: Father’s Day
A Head Bleed that Went Undetected
Living with an Inhibitor